Sannel Larson

Tuesday, February 26, 2013

Fibromyalgia and Chronic Fatigue Syndrome - Is it Really Worth it to Have One Day of Fun?


Is it really Tuesday again? Where has the time gone. . . well, I know where half of my week went.

It was spent in bed in a dark room, too tired and in too much pain, to do anything else but sleep the hours away. When pain woke me up from my sleep, I stared into the wall, wishing I could fall asleep again, just to get a break from the horrible pain.

After three days in this state, I'm starting to wonder, if it's really worth it to have one day of fun, knowing I'll pay the piper for it the rest of the week?



So what was this "fun" you did, you ask.

I celebrated my birthday by spending some hours with my childhood friend, chatting over a cup of coffee and cake, held a newborn baby in my arms, took a short walk in the forest, stopped to pet some horses. In the evening, I enjoyed a lovely meal in a restaurant with my family.
For most of us, it does not sound too exhausting, but for someone who's suffering from Fibromyalgia and Chronic Fatigue Syndrome, it means way too much!!

Anything that will alter my immobile, everyday routine, will have a negative impact on my mental and physical health. I do know my limits and I try to plan around it. However, it does not take much to have me fall into complete exhaustion and into the black hole of depression.



Every night I dream that tomorrow will be better, and eventually it will. So this morning when I woke up, with my usual excruciating, stabbing, crushing pain all over my body, I was thrilled - so happy, because I felt this morning was different. This morning, I woke up rested which meant, I can manage my pain, so I can once again live my "normal" painful, foggy life.

So today, I have the urge to write on my blog,  read, visit my friends on FB, write a poem, do some illustrations to my book, eat, dream, enjoy the blessings life has to offer. . . .Oh, life is wonderful - and I'm so happy!!





6 comments:

  1. Sannel, I'm sorry that your illness puts you in such a position; live life and pay for it big time or shy away from life and still suffer but maybe not as much.

    Thanks for being so open and honest about your illness and it's effects. You're doing a service for all like you letting them know they are not alone. You do another service to those of us who don't have Fibro and CFS and find it difficult to understand and relate to your invisible disease. Keep up the good work, Sannel. I know which blog I'll be visiting each Tuesday! :)

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  2. Rick, I’d like to thank you for your kind words and for being such a wonderful and loyal reader. I'm so blessed having wonderful friends like you to brighten my day. Your visits always make me glad.
    Thank you, my dear friend!

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  3. Yup! Because you can share about it for the next days receiving residuals. Sometimes residuals like royalties last a lifetime. A day of fun is a Wonderful Investment toward a future.

    A horse is a horse, of course, of course, / And no one can talk to a horse of course / That is, of course, unless the horse is the famous Mister Ed . . .

    http://youtu.be/pvpFxr3vXAU

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  4. Sannel,Thank you for sharing your life with such openness and honesty. I completely understand how you feel. I had suffered from FMS and CFS for 30+ years. I have found some products that help me and I am open to sharing them with you if and when the moment is right.
    By the way, your blog is beautiful!
    Best Wishes,
    Janet Weiner
    http://tinyurl.com/JanetsFMSCFSSite

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  5. Janet, I'm sorry to hear you suffer as well. I'm open to try anything that may lessen my symptoms. I'll visit your blog soon. Thank you for your time and for your beautiful compliment.
    Take care!

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  6. Aloha Sannel
    Thank you for being the voice for the millions stricken with a disabling disease that is still misunderstood. I was dx when i was in my 20s then in 2005 dx with RA and now with osteoarthritis and new onset diabetes. My granddaughter gives me laughter and the strength to hold on each day esp when i don't want to hang on anymore. I am blessed. I am now part of sharing in groups on Facebook such as fibro hurts and is absolutely amazing the energy that is given when someone shares their story.

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Your lovely comments are my reward.
Thank you !