Sannel Larson

Tuesday, February 19, 2013

Living with Fibromyalgia and Chronic Fatigue Syndrome "Today is not a good day"

If you have read my other Fibromyalgia and Chronic Fatigue Syndrome posts, you know that I'll share with you my own ordeal with these illnesses, and also provide you with important facts about Fibromyalgia and Chronic Fatigue Syndrome. 
Hopefully, by sharing my everyday struggle, I may help someone in the same situation, not to feel so lonely. I hope, too, that non-sufferers of these debilitating and often "invisible" illnesses, will learn and understand better what it means to live with this, and how it affects our everyday lives. 

Living life one hour at the time
Living with these illnesses makes it difficult to plan ahead. I have no idea how I will feel in a week, day or even one hour from now. I have learned to make the most out of the hour or hours when I feel almost like my old self - like calling my friends on the phone, do the dishes, write, go shopping, draw my illustrations and take a walk.

However, I tend to overdo it because I'm so extremely happy and excited that I'm able to do something other than just lay in bed, so the next day, the pain and exhaustion will get even worse, and forces me to be completely inactive for days with a mental state of complete exhaustion.

Today is one of those day's - Not a very good day! 
Today it takes all my energy and willpower to write these few lines here. The pain in my hands does make it really hard to type, and my mind is exhausted so you'll have to excuse me for making this blog post rather short. Hopefully, tomorrow will be a "good day."


  1. Dear Sannel, I'm so sorry that this is one of those "bad days". I know you rarely have truly good ones and many days you hope are just "better" than the last. Please rest, take care of yourself and recover as best you can. This blog, your other writing and illustrations can wait. Your friends, followers and supporters aren't going anywhere! Take care, dear friend.

  2. Rick, your presence can brighten anyone's day. Thank you!

  3. Mitch, I'll rest. . . Thank you!

  4. Hey Sannel, I just discovered your blog. And loved your idea of living one hour at a time.
    Thank you for sharing the poster created by me. It feels to see your efforts being shared with due credits :)

    Fibromyalgia Awarenees Blogger

  5. Sannel, I just found your page. I have been living your life since 1998. I understand exactly what you are going through.
    I don't know how you do a daily blog. I write also and have a blog on WordPress, but there is no way I could do something worth reading everyday. Kudos to you. I write poetry, short stories and do photo-galleries.
    I try not to think about the pain and the fatigue that plague me on a daily basis. I try to concentrate on what I can do now and what I am able to make myself do.
    I was wondering if you do better in the summer? I do but then I have always been a "sun" person.
    Good luck with this, I will try and stop by on a regular basis. If you are interested in my site, let me know and I will send you the url.


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Thank you !